MS Discuss: A Must Read!!!

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sammee
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Joined: 27 Jul 2007
Location: Canada
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Topic: A Must Read!!!
Posted: 23 Jun 2009 at 11:05am

Hi y'all!!! Mr Neurologst suggested I read "My Stroke of Insight" by Jill BolteTaylor, Ph D.
She is a Harvard trained brain scientist, a neuroanatomist
This book is how she suffers a horrible stroke, brain damaged, and she recovers. It is pretty powerful. Dr. W was explaining to me about the damage MS has caused in my brain (numerous lesions) and how sometimes, the other side of brain takes over! I asked him if he could re-wire my brain, he laughed. This book is incredible, and gives some hope to my damaged brain Cheers!

worry about tomorrow when it is today, and forget it when it is yesterday

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Lex87
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Posted: 28 Oct 2009 at 2:06pm

My mum LOVES Jill Bolte Taylor. She is always sending me clips. There are so many studies that suggest we can rewire our brains.

http://www.youtube.com/watch?v=CCB0HFiFbVQ

Cheers
Lexy

sound oasis sound therapy

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sammee
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Joined: 27 Jul 2007
Location: Canada
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Posts: 385

Posted: 03 Nov 2009 at 10:15am

thanx Lexy!!!!

worry about tomorrow when it is today, and forget it when it is yesterday

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diezy
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Posted: 30 Jan 2010 at 10:54am

I have been told that we do not use all of our brain, and when some portion of it is damaged other used parts can be trained. However when this happens you become some what overloaded until training is completed. This causes you to be tried, and to make some silly mistakes (words backs) stops in mid-thinking. But keep trying it becomes easier, but I have found that I still become very tired.

diezy

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diezy
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Posted: 30 Jan 2010 at 11:04am

MS is not new to me as my mother had this also. However I do not seem to following in her foot prints. I have banding and find that it makes me very exhausted. This is also very painful. Have any of you found how to live with this. I was told to go to bed until it released but I seem to have this frequently. I have been give some pain killer to cope. I do not like the inactivity as I am used to walking 1 - 3 miles a day. I now seem to be weaker in my legs since this has been happening. I also have to urinate frequently (this is new) and I have pressure in my bladder like I am always having to visit the washroom. How do you handle the exhaustion and pain. Maybe it is the pain that causes this I do not know. I know Mom was always pushing herself.

diezy

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sammee
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Joined: 27 Jul 2007
Location: Canada
Online Status: Offline
Posts: 385

Posted: 02 Feb 2010 at 10:11am

hi diezy. Go and pick up book "My Stroke of Insight" written by Jill Bolte Taylor, Ph. D. She is a brain scientist and talks about exactly what you said "Training other parts of the brain". My Neuorologist suggested I read, and it is powerful. READ!!

worry about tomorrow when it is today, and forget it when it is yesterday

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barbara
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Joined: 07 Oct 2006
Location: Canada
Online Status: Offline
Posts: 376

Posted: 03 Jun 2010 at 5:17pm

Hi Diezy - reading through and saw your comment about banding - I had it and it comes back - I have been taking Gabapentin - which does make you sleepy - but I've found - if I just really relax - with pill - it goes away after about a week

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diezy
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Posted: 07 Jun 2010 at 11:00am

Hi Barbara

I do not know if you will see two reply to your comment. My computer hit a glick and do not know if the other reply went through. I will be see a specialist in July and will ask about Gabapentin. Do you take it all the time or just when you have the banding? I find bending over for any long period of time make me very short of breath and cause the banding. lol I now try to squat which has its troubles also. Getting up from a squat is not a simple task anymore. Can not raise straight up from squat it is quite a preformance but can still eventually get up (now look to have something that I can pull myself up with) Life goes on and I takes everything with a smile and say I can still do it even if it take more time and effort and looks funny oh well

laugh at and with myself

cheer myself on and

give myself a big thumbs up when I do it. Try not to let banding get my down but sometimes it is the worst. Thanks again

Diezy

diezy

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barbara
Senior Member

Joined: 07 Oct 2006
Location: Canada
Online Status: Offline
Posts: 376

Posted: 20 Jun 2010 at 11:43am

I used to take it just when banding but now I take 3 a day - don't remember why. sorry getting old

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Author	Message
sammee Senior Member Joined: 27 Jul 2007 Location: Canada Online Status: Offline Posts: 385	Topic: A Must Read!!! Posted: 23 Jun 2009 at 11:05am
	Hi y'all!!! Mr Neurologst suggested I read "My Stroke of Insight" by Jill BolteTaylor, Ph D. She is a Harvard trained brain scientist, a neuroanatomist This book is how she suffers a horrible stroke, brain damaged, and she recovers. It is pretty powerful. Dr. W was explaining to me about the damage MS has caused in my brain (numerous lesions) and how sometimes, the other side of brain takes over! I asked him if he could re-wire my brain, he laughed. This book is incredible, and gives some hope to my damaged brain Cheers!
	worry about tomorrow when it is today, and forget it when it is yesterday
	IP Logged

Lex87 Newbie Joined: 18 Sep 2009 Online Status: Offline Posts: 2	Posted: 28 Oct 2009 at 2:06pm
	My mum LOVES Jill Bolte Taylor. She is always sending me clips. There are so many studies that suggest we can rewire our brains. http://www.youtube.com/watch?v=CCB0HFiFbVQ Cheers Lexy
	sound oasis sound therapy
	IP Logged

sammee Senior Member Joined: 27 Jul 2007 Location: Canada Online Status: Offline Posts: 385	Posted: 03 Nov 2009 at 10:15am
	thanx Lexy!!!!
	worry about tomorrow when it is today, and forget it when it is yesterday
	IP Logged

diezy Newbie Joined: 29 Jan 2010 Location: Canada Online Status: Offline Posts: 5	Posted: 30 Jan 2010 at 10:54am
	I have been told that we do not use all of our brain, and when some portion of it is damaged other used parts can be trained. However when this happens you become some what overloaded until training is completed. This causes you to be tried, and to make some silly mistakes (words backs) stops in mid-thinking. But keep trying it becomes easier, but I have found that I still become very tired.
	diezy
	IP Logged

diezy Newbie Joined: 29 Jan 2010 Location: Canada Online Status: Offline Posts: 5	Posted: 30 Jan 2010 at 11:04am
	MS is not new to me as my mother had this also. However I do not seem to following in her foot prints. I have banding and find that it makes me very exhausted. This is also very painful. Have any of you found how to live with this. I was told to go to bed until it released but I seem to have this frequently. I have been give some pain killer to cope. I do not like the inactivity as I am used to walking 1 - 3 miles a day. I now seem to be weaker in my legs since this has been happening. I also have to urinate frequently (this is new) and I have pressure in my bladder like I am always having to visit the washroom. How do you handle the exhaustion and pain. Maybe it is the pain that causes this I do not know. I know Mom was always pushing herself.
	diezy
	IP Logged

sammee Senior Member Joined: 27 Jul 2007 Location: Canada Online Status: Offline Posts: 385	Posted: 02 Feb 2010 at 10:11am
	hi diezy. Go and pick up book "My Stroke of Insight" written by Jill Bolte Taylor, Ph. D. She is a brain scientist and talks about exactly what you said "Training other parts of the brain". My Neuorologist suggested I read, and it is powerful. READ!!
	worry about tomorrow when it is today, and forget it when it is yesterday
	IP Logged

barbara Senior Member Joined: 07 Oct 2006 Location: Canada Online Status: Offline Posts: 376	Posted: 03 Jun 2010 at 5:17pm
	Hi Diezy - reading through and saw your comment about banding - I had it and it comes back - I have been taking Gabapentin - which does make you sleepy - but I've found - if I just really relax - with pill - it goes away after about a week
	IP Logged

diezy Newbie Joined: 29 Jan 2010 Location: Canada Online Status: Offline Posts: 5	Posted: 07 Jun 2010 at 11:00am
	Hi Barbara I do not know if you will see two reply to your comment. My computer hit a glick and do not know if the other reply went through. I will be see a specialist in July and will ask about Gabapentin. Do you take it all the time or just when you have the banding? I find bending over for any long period of time make me very short of breath and cause the banding. lol I now try to squat which has its troubles also. Getting up from a squat is not a simple task anymore. Can not raise straight up from squat it is quite a preformance but can still eventually get up (now look to have something that I can pull myself up with) Life goes on and I takes everything with a smile and say I can still do it even if it take more time and effort and looks funny oh well laugh at and with myself cheer myself on andgive myself a big thumbs up when I do it. Try not to let banding get my down but sometimes it is the worst. Thanks again Diezy
	diezy
	IP Logged

barbara Senior Member Joined: 07 Oct 2006 Location: Canada Online Status: Offline Posts: 376	Posted: 20 Jun 2010 at 11:43am
	I used to take it just when banding but now I take 3 a day - don't remember why. sorry getting old
	IP Logged