MS Discuss: Stem Cell Therapy

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youbetcha
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Joined: 21 Sep 2009
Location: Canada
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Posts: 13

Topic: Stem Cell Therapy
Posted: 27 Oct 2009 at 2:37pm

Has anyone here given consideration the the Adult Stem Cell therapy that is available in a few countries (Israel, Costa Rica, etc.)?

I'm seriously considering taking the trip to Tel-Aviv for this treatment and was just curious if anyone had already been through this experience. I have done quite a bit of research, but nothing beats first hand information.

Thanks.

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sammee
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Joined: 27 Jul 2007
Location: Canada
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Posts: 385

Posted: 29 Oct 2009 at 10:09am

oh youbetcha. Please please look into this further. I have researched this and at the MS Conference this weekend, they talk about it. There are some fierce symptoms to consider. Keep me posted and PleASE dont jump just yet. Good things coming in 2010!!!

worry about tomorrow when it is today, and forget it when it is yesterday

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youbetcha
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Posted: 29 Oct 2009 at 12:26pm

Personal Update:

I've decided to try the stem cell therapy and am waiting for an appointment date from the clinic. The procedure itself costs $28,000 USD. Quite a few Americans have already been through this process and it sounds promising......

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youbetcha
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Posted: 02 Nov 2009 at 11:54am

Hi Sammee,

Through all the extensive research I've done, I don't see any side effects listed. The only downside I'm aware of is that it doesn't work for everyone and therfore could potentially be out $28K.

The one that I read was some what dangerous, is the procedure that uses chemo to kill immune system first and stem cell transplant after. I'm not going to do that one. The procedure for me will be the aspiration (taking bone marrow) in Tel-Aviv and infusion (through spine) in Greece a few months later. Did you come across something different? Canada has a stem cell research team working on this as well, however, it won't be available here or the US for at least few more years.....

Look forward to hearing from you.......(or anyone on this matter)

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youbetcha
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Posted: 07 Nov 2009 at 11:58am

Another Personal Update:

The date is set. I will be leaving for Israel the first week of December for the bma (bone marrow aspiration). Once this 1st half of the process is complete, I will post my experience in this thread. Hopefully the information I provide will serve others in helping them to make a decision in whether or not this is something they would like to try.

I'm feeling good about my decision to go!

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youbetcha
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Posted: 18 Feb 2010 at 11:06am

Well, I had the aspiration done in Israel on Dec. 8th and I will be headed to Greece for the infusion part of it, 2nd week of March.

I'm a little nervous about the infusion part of it but am also excited as I keep having relapses that go untreated, causing me more and more symptoms and I'm sure that the cells will "do their thing".

I will post details of the infusion once I've completed that part. As for the aspiration, it was a breeze!

Edited by youbetcha - 18 Feb 2010 at 11:07am

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Miyoko
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Joined: 07 Nov 2007
Location: Canada
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Posts: 80

Posted: 26 Feb 2010 at 10:31am

Hi Youbetcha: I am glad to hear that your treatment is going well. Do let us know how the next step is like. I do hope the outcome is good. I am impressed with your courage to go through the process.

Miyoko

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Troy
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Joined: 05 May 2010
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Posted: 07 May 2010 at 12:13pm

There is a company called Stem Cell Theraputics
http://www.stemcellthera.com/
that have a way, Yes have a way to trigger your own neural stem cells in your brain using 2 already approved drugs. They are in the middle of some very effective stroke trials right now and will be starting M.S. trials soon. These are the guy's who pointed out prolactin rebuilds the myelin sheath in pregnant and lactating women.

Edited by Troy - 07 May 2010 at 12:15pm

At what point does anecdotal evidence become overwhelming?

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Miyoko
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Posted: 10 May 2010 at 9:42am

The work by Stem Cell Therapeutics Corp sounds promising. I know Dr. Hill who was involved in the stroke trial. We should see how the stroke trial results. If the outcome is promising, then the application of their technology to MS would be promising as well. Apparently there are more than 200 companies world wide who offer stem cell therapy. A lot of them are bogus. One has to be very careful who you are dealing with. I feel that stem cell therapy maybe the effective one for progressive form of MS since their problem appears to be neuronal cell death rather than just inflammation and loss of myelin sheath.

Edited by Miyoko - 10 May 2010 at 9:43am

Miyoko

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rowdy
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Joined: 11 May 2010
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Posts: 2

Posted: 11 May 2010 at 2:41pm

Hi All~
I am new and have had ms for 32 years.Been on a study, had Leukopherisis, etc. I noticed this post for stem cell and wanted to pass on what is very simple has greatly changed my life for the better. I am still walking with a walker, long distance a wheel chair.
   A year ago had a relapse while on Rebiff that left only my lt hand working.I barely came back from this attack this time.The disability stayed. I could no longer sit up or sit in a chair.I decided to go on chemo after steroid infusion for a week. It worked but not enough. I chucked the rebiff as it made me sick and longer worked.
    As I couldn't stay on chemo forever I went back to what I did my first years, adding cod liver oil which helped immensely. I then went onto taking high doses of fish oil 3 times a day at the urging of my BF.
I started low at first two pills twice a day. There was some improvement but nothing spectacular. I upped the dose and it was like getting replugged into the electrical grid. It was overwhelming the feeling of imput that was getting to my appendages.
     I got stronger fast. My right hand has been non functional for 7 years. I now can lift heavy pails, laundry hampers, use the remote, hold a fork. It is really been miraculous.I can even pour a 1/2 gallon of milk with my right hand.I have over 100 new abilities. My life has totally been revitalized. Since I am not keen on hospitals nor can afford the transplant this was a godsend to me.My husband is still in shock.
   The dose I take is 2400mgs 3 times a day.My husband gets the big bottle at Costco. If you are taking blood thinners work with your Dr.as fish oil thins the blood.I am also taking Vitamin D as well as tumeric, b50, calcium & magnesium,and I am following a non gluten diet.
    I am back to walking , lifting weights, stationary bike, vacuuming, sweeping etc, continue my work as a jewelry designer. Life is good!

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Treatments, Therapies and Alternative Medicine
MS Discuss :Multiple Sclerosis Discussion Forum :Treatments, Therapies and Alternative Medicine

Author	Message
youbetcha Newbie Joined: 21 Sep 2009 Location: Canada Online Status: Offline Posts: 13	Topic: Stem Cell Therapy Posted: 27 Oct 2009 at 2:37pm
	Has anyone here given consideration the the Adult Stem Cell therapy that is available in a few countries (Israel, Costa Rica, etc.)? I'm seriously considering taking the trip to Tel-Aviv for this treatment and was just curious if anyone had already been through this experience. I have done quite a bit of research, but nothing beats first hand information. Thanks.
	IP Logged

sammee Senior Member Joined: 27 Jul 2007 Location: Canada Online Status: Offline Posts: 385	Posted: 29 Oct 2009 at 10:09am
	oh youbetcha. Please please look into this further. I have researched this and at the MS Conference this weekend, they talk about it. There are some fierce symptoms to consider. Keep me posted and PleASE dont jump just yet. Good things coming in 2010!!!
	worry about tomorrow when it is today, and forget it when it is yesterday
	IP Logged

youbetcha Newbie Joined: 21 Sep 2009 Location: Canada Online Status: Offline Posts: 13	Posted: 29 Oct 2009 at 12:26pm
	Personal Update: I've decided to try the stem cell therapy and am waiting for an appointment date from the clinic. The procedure itself costs $28,000 USD. Quite a few Americans have already been through this process and it sounds promising......
	IP Logged

youbetcha Newbie Joined: 21 Sep 2009 Location: Canada Online Status: Offline Posts: 13	Posted: 02 Nov 2009 at 11:54am
	Hi Sammee, Through all the extensive research I've done, I don't see any side effects listed. The only downside I'm aware of is that it doesn't work for everyone and therfore could potentially be out $28K. The one that I read was some what dangerous, is the procedure that uses chemo to kill immune system first and stem cell transplant after. I'm not going to do that one. The procedure for me will be the aspiration (taking bone marrow) in Tel-Aviv and infusion (through spine) in Greece a few months later. Did you come across something different? Canada has a stem cell research team working on this as well, however, it won't be available here or the US for at least few more years..... Look forward to hearing from you.......(or anyone on this matter)
	IP Logged

youbetcha Newbie Joined: 21 Sep 2009 Location: Canada Online Status: Offline Posts: 13	Posted: 07 Nov 2009 at 11:58am
	Another Personal Update: The date is set. I will be leaving for Israel the first week of December for the bma (bone marrow aspiration). Once this 1st half of the process is complete, I will post my experience in this thread. Hopefully the information I provide will serve others in helping them to make a decision in whether or not this is something they would like to try. I'm feeling good about my decision to go!
	IP Logged

youbetcha Newbie Joined: 21 Sep 2009 Location: Canada Online Status: Offline Posts: 13	Posted: 18 Feb 2010 at 11:06am
	Well, I had the aspiration done in Israel on Dec. 8th and I will be headed to Greece for the infusion part of it, 2nd week of March. I'm a little nervous about the infusion part of it but am also excited as I keep having relapses that go untreated, causing me more and more symptoms and I'm sure that the cells will "do their thing". I will post details of the infusion once I've completed that part. As for the aspiration, it was a breeze! Edited by youbetcha - 18 Feb 2010 at 11:07am
	IP Logged

Miyoko Groupie Joined: 07 Nov 2007 Location: Canada Online Status: Offline Posts: 80	Posted: 26 Feb 2010 at 10:31am
	Hi Youbetcha: I am glad to hear that your treatment is going well. Do let us know how the next step is like. I do hope the outcome is good. I am impressed with your courage to go through the process.
	Miyoko
	IP Logged

Troy Newbie Joined: 05 May 2010 Location: Canada Online Status: Offline Posts: 4	Posted: 07 May 2010 at 12:13pm
	There is a company called Stem Cell Theraputics http://www.stemcellthera.com/ that have a way, Yes have a way to trigger your own neural stem cells in your brain using 2 already approved drugs. They are in the middle of some very effective stroke trials right now and will be starting M.S. trials soon. These are the guy's who pointed out prolactin rebuilds the myelin sheath in pregnant and lactating women. Edited by Troy - 07 May 2010 at 12:15pm
	At what point does anecdotal evidence become overwhelming?
	IP Logged

Miyoko Groupie Joined: 07 Nov 2007 Location: Canada Online Status: Offline Posts: 80	Posted: 10 May 2010 at 9:42am
	Hi The work by Stem Cell Therapeutics Corp sounds promising. I know Dr. Hill who was involved in the stroke trial. We should see how the stroke trial results. If the outcome is promising, then the application of their technology to MS would be promising as well. Apparently there are more than 200 companies world wide who offer stem cell therapy. A lot of them are bogus. One has to be very careful who you are dealing with. I feel that stem cell therapy maybe the effective one for progressive form of MS since their problem appears to be neuronal cell death rather than just inflammation and loss of myelin sheath. Edited by Miyoko - 10 May 2010 at 9:43am
	Miyoko
	IP Logged

rowdy Newbie Joined: 11 May 2010 Online Status: Offline Posts: 2	Posted: 11 May 2010 at 2:41pm
	Hi All~ I am new and have had ms for 32 years.Been on a study, had Leukopherisis, etc. I noticed this post for stem cell and wanted to pass on what is very simple has greatly changed my life for the better. I am still walking with a walker, long distance a wheel chair. A year ago had a relapse while on Rebiff that left only my lt hand working.I barely came back from this attack this time.The disability stayed. I could no longer sit up or sit in a chair.I decided to go on chemo after steroid infusion for a week. It worked but not enough. I chucked the rebiff as it made me sick and longer worked. As I couldn't stay on chemo forever I went back to what I did my first years, adding cod liver oil which helped immensely. I then went onto taking high doses of fish oil 3 times a day at the urging of my BF. I started low at first two pills twice a day. There was some improvement but nothing spectacular. I upped the dose and it was like getting replugged into the electrical grid. It was overwhelming the feeling of imput that was getting to my appendages. I got stronger fast. My right hand has been non functional for 7 years. I now can lift heavy pails, laundry hampers, use the remote, hold a fork. It is really been miraculous.I can even pour a 1/2 gallon of milk with my right hand.I have over 100 new abilities. My life has totally been revitalized. Since I am not keen on hospitals nor can afford the transplant this was a godsend to me.My husband is still in shock. The dose I take is 2400mgs 3 times a day.My husband gets the big bottle at Costco. If you are taking blood thinners work with your Dr.as fish oil thins the blood.I am also taking Vitamin D as well as tumeric, b50, calcium & magnesium,and I am following a non gluten diet. I am back to walking , lifting weights, stationary bike, vacuuming, sweeping etc, continue my work as a jewelry designer. Life is good!
	IP Logged

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